Jacobs corner of the world

This is jacobs corner of the world.  He has his own nurse 24 hours a day and as long as he is on the ECMO machine, he also has a 24 hour a day ecmo man.

yesterday Jacob has some problems.. He had air in his chest caused by a leaking right lung.  they had to go in and suction the air out and decrease the pressure from the ventilator.  He had problems with the ecmo yesterday too, they had to cut the stitches and move the tubes deeper.    This poor baby has such a long hard road ahead of him and his situation changes from moment to moment...

I really hesitate to post this picture of him.. it seems so gruesome.  but I feel like your all part of this because of your dedication to pray for him.  I want you to see how beautiful he is and how badly he needs your prayers.

We took Tony and Nessa out to Longhorns for a great steak dinner last night.  I think it was good for them to get out of there and to have a good meal.  My heart just breaks for these kids.

And here is grammie wackadoodle!  wasnt gonna post this one for sure.. but then I thought I look like a cartoon charactor and thought.. "this ones for jacob pie!"

and then.. theres grumpy old grampy..

I'm going to work and hopefully staying the whole day..  Not sure if I'll go up to the hospital today or not.  LIttle Tony was going back to work today.   ITs going to be a tough day for him to leave nessa and the baby there alone and for Nessa to spend her first day there alone. 

the hospital is over an hour away for me, not to mention that gas is expensive, so at some point I'm going to have to limit myself to every other day... ... It kills me to just think that..

OK.. I do need to get ready for work.  feeling a tiny bit weepy at the moment.. but I'm going to do what i need to do and get moving.  

Keep praying..

♥♥♥♥♥♥♥